Honoring Mothers: Sickle Cell Loss and Courage

In honour of mums who’ve lost a child to Sickle Cell Anaemia and made to feel guilty for the loss of their babies. 

No mother should ever have to bury her baby. 

BLOOD CODE

& I cannot tell you the meaning of my name

                                                                       without telling you the story of my mum

 a Nigerian woman who at the age of 16 lost her first baby.

& her second baby when she was 18.

the first baby on the first day after a few breaths…

& second at three months 

                                                    as chronic pain ravaged her fragile body.

& that watershed moment 

                                            when her breath slowly faded 

            a 

               w 

                   a 

                       y 

like a maple falling leaf

bronze-orange in autumn foggy morning

                                                                    her eyes yellowish-orange 

as bilirubin flooded her bloodstream

her red blood cells 

b r o k e 

                 d 

                     o

                      w

                        n

I’d also have to let you know ‘bout                                                                                                                                                                                                                                                                              

the bow-line knot in her stomach 

                                                         as her baby’s tiny fingers & toes

s w e l l e d

 b’cause the sickle-shaped red blood cells

                                                                    blocked 

                                                                                    the blood flow to her tiny bones

& the burden she bore

watching her baby in agonising pain

                                                           & pain she’d gladly bear

as her baby’s life faded

                                                            a 

                                                            w 

                                                               a 

                                                                   y

that memory etched in her soul.

& how that moment changed her life.

I’d have to tell

the burden & guilt she bore 

like a crown of thorns

                                        weighing 

                                                         d

                                                           o

                                                            w

                                                             n on her 

& the w h i s p e r s like wisps of smoke hovering around her

because in the 70’s landscape,

people knew nothing about sickle cell disease.

so, they shamed mums

                                             ostracized 

 mums

& called the babies 

                                                Ogbanje 

                                                 evil child.

I’d have to tell you 

my mum didn’t buckle 

&because I came along

she called me 

                                                Botimi

                                                  Comestay

desperate to believe 

but like my two sisters before me 

she bore a foreboding tinge of fear

                                                              every time she’d rush me to the hospital

in temperatures high enough to cramp my muscles

but I survived 

& three months 

                           & one year

I’m still here

                              & I believe

 It’s because of Christ 

 because of the blood

                                      that I’m alive.

2 responses to “Honoring Mothers: Sickle Cell Loss and Courage”

  1. thesoultycrone Avatar

    A very moving piece

    Liked by 1 person

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